Friday Apr 29, 2022
18-year-old Cate Casey always knew she was extra flexible and had a lot of headaches, but during her teen years, she found herself unable to do most of her normal activities – and had no idea why. Join us this week as we talk to Cate and a member of her “medical village”, Dr. Melodie Blacklidge, about Cate’s eventual diagnoses of Hypermobility Spectrum Disorder and POTS – or postural orthostatic tachycardia syndrome. If you’re “double jointed”, super flexible, have an arm-span longer than your height, can pull your pinkie back toward your wrist or have otherwise heard that you are hypermobile – this is your episode! Dr. Blacklidge explains hypermobility in the most understandable way and she helped connect the dots for Cate. We also explore how lonely it can be to have a condition that others don’t understand, Cate’s commitment to advocating for her own care and the dangerous, slippery slope of looking to social media and online influencers for support and advice about medical conditions. Cate is a remarkable young woman and we hope you’ll join us to hear her story.
For more information on the Ehlers-Danlos Society click here: https://www.ehlers-danlos.com/support-echo/?gclid=EAIaIQobChMI3YnGmsuv9wIVMyc4Ch0ewQ2VEAAYASAAEgI7t_D_BwE